Imagine a disease that robs you of your sight, your movement, and cognitively impairs you before it becomes fatal? Now imagine this happening to a child. This is often the reality of Batten’s disease.
The team at Genezen is honored to partner with the Charlotte & Gwenyth Gray Foundation, started by two parents committed to finding a cure for Batten Disease to save the lives of their daughters; the Foundation recognizes firsthand the day-to-day challenges of living with a rare disease.
In addition to funding research, the Foundation also provides financial support to families for education, patient therapies, and equipment critical to their well-being and rehabilitation. While we can’t disclose the current project we’re working on together, we look forward to sharing our progress in 2026.
To learn more about Batten Disease and the work the foundation is doing, visit https://www.curebatten.org/education/
